Cystic Fibrosis

My Daughter Wasn't Expected To Live Past 31. A New Drug Saved Her — But There's 1 Big Catch.

"I texted a close friend: 'Sammie is less than five years from 31.' And then I broke down."
By 

My Life Expectancy Is 44. This Is How I’m Dealing With Losing A Year To Covid

My cystic fibrosis means, at 21, I feel pressure to achieve and experience everything I can while I have time. A year shielding indoors is the exact opposite of that.
By 

A Double Lung Transplant Gave Me A Second Chance At Life

I will never know or meet the person whose lungs I received, but I do know that they are the most significant and inspiring person in my life today
By 

I'm A Living, Breathing Reminder Of Why Everyone Should Have The Organ Donation Conversation

Most people couldn’t imagine their life hanging in the balance aged 27 but a little over 18 months ago this was my reality.
By 

Sweden, Ireland and Italy Value The Lives Of Children Afflicted With Cystic Fibrosis — Why Is Our Son Not Treated The Same In The UK?

We have done everything we were supposed to as citizens and parents. And yet our child could die needlessly young because the NHS won't pay for lifesaving drugs freely available elsewhere
By 
and

People With Cystic Fibrosis To Stage Protest Over Drug’s Availability

The drug could benefit thousands of people in the UK.
By Press Association

The Bacteria You Sneeze Out Stays Alive For 45 Minutes

Hand sanitiser anyone?
By 

People Share The One Thing They Wish Others Knew About Their Disability Or Illness

'Just because you can’t see it, or because I’m fine sometimes, doesn’t mean it isn’t real.'
By 

Mum Shares Video Of Her 'Hitting' Newborn Baby To Raise Awareness Of Rare Condition

'It’s not as shocking for you as it is for us cystic fibrosis mums and dads.'
By