rare diseases
Doctors Said Our Baby Had Epilepsy. After Months Searching For Answers, We Finally Learned The Truth
When Rylae-Ann was three months old, we saw signs that all was not right.
"I hated every single thing about this insidious disease ... I would have given anything ― my home, my limbs, my life ― to banish it. But its tentacles were too strong."
'We were all devoted to Ivan and as a family.'
'I just really want to know what I’m suffering from.'
'On her last day with us, Ella suddenly had this extraordinary burst of life.'
'He deserves a normal life just like any other kid'
Serena Jacques' suffers from short term memory loss.
'I don’t want to look perfect, just normal.'
